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Hello again! We are back with another update on Little Man. He did really well with his medicine for nec and is now back to getting feeds. They are working on getting him up to a full volume and were able to remove his picc line today. While he was still battling nec he kept pulling his CPAP mask off so they switched him to a high flow nasal cannula. Thankfully he ended up doing great with this before getting weaned off and is now officially breathing on his own with no support! We have also gotten a few other results back. His genetic test showed he is just a carrier for GSD. His eye exam yesterday showed there are no noticeable concerns. He will also be getting a hearing test this week, but so far there is no indication of something being wrong. Now we are working on feeding and hopefully he will be home within the next three weeks! Thank you so much for your support throughout this journey! As long as he does not have anymore surprises, our next update will be letting you know he is home!
Meal Gift Cards
Use the link below to open the Uber Eats gift card page. You can send a gift card directly to them at their email address: [email protected].
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Baby Registry
Hello friends! Thank you so much for showering our sweet little boy with love 💗
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